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Welcome to Leeds Community Pain Service

Our team will help you to develop ways of living a better life with your long term pain.

We are a team of health professionals who have a wealth of experience and knowledge of how to help you reduce the impact of long term pain. We also have in our team a Peer Support worker from Touchstone and a peer led group who have first-hand knowledge of what it is like to live with long term pain. They will be able to offer you support whilst you are a patient in our service and in the longer term, after you have been discharged from LCPS.

Your appointment

Your journey- with LCPS starts with a telephone appointment. This will introduce you to the service and start the assessment process.

The assessment is online and is part of the Pain Toolkit. You can do this independently or we can help you complete it and this will usually be done with one of our Healthcare Trainers.

Once the assessment has been completed you will then have an appointment with a Leeds Community Pain Service  team member, this will be either  a nurse, physiotherapist or occupational therapist, to look more closely at what is important for you to change. this could be around issues  for example with sleep, mood, activities, exercise, medications. We will work together to develop you action plan and goals.

For the best results you need to play an active role in the management of your pain.

COVID-19 Update: 

Leeds Community Pain Service is fully open.

It is virtual service with online groups. A small number of patients are being offered a face-to-face appointment when deemed appropriate.

You can find out more about virtual appointments on our virtual appointment page

You can also watch the video below to find out more about virtual appointments:

Welcome to Leeds Community Pain Service Peer Support Group.

We are a group of patients who meet up regularly, currently on zoom.

Don’t worry if you aren’t computer savvy, we can help you with this.

When we are fully up and running after Covid we aim to have meetings in and around the city.

What is Peer Support?

‘Peer Support is where people use their own experiences to help each other.  There are different types of Peer Support, but they aim to bring together people with shared experiences to support each other, provide a space where you feel accepted and understood.’

Here at the Leeds Community Pain Service, our Peer Support team is made up of Katie, the Peer Support & Volunteer Development Worker and so far, two Volunteer Peer Supporters Hayley and Sue. The one thing we all have in common is that we all have lived experience with chronic/long-term pain.   We all ‘get it’, we all understand what it is like to live in pain; how it feels to have to cancel arrangements at the last minute; feeling like we are letting our loved ones down or trying to explain what it is like living in pain to people without pain.  

Managing our pain is something that we all live with, and we find having a safe space to have a chat with people in a similar position really does make a massive difference to our health and wellbeing.    First and foremost, we do not judge anyone, we just enjoy getting together and supporting each other.

Now that we are coming out of lockdown, we are planning to start face-to-face peer support groups (dates and venue are to be confirmed). We will also continue to facilitate weekly online peer support groups (via Zoom) for whoever prefers this.

How can I get Peer Support?

The best way to access peer support is to ask your Pain Clinician at the Community Pain Service to refer you to us, if you’re unsure who this is then contact the Pain Service admin team who will help on 0113 843 3356. Once we have received your referral form, either Katie or one of the volunteers will be in touch. 

We normally say, “You bring yourself along to the group and we will supply the warm welcome!” (we may even supply some lovely cake!) but if meeting face-to-face or on Zoom is not what you feel comfortable doing then there are other ways you can be involved.

We will also be restarting out Pain Service specific newsletters soon, where you will find lots of useful information, meet the Peer Support and wider Leeds Community Pain Service team and stay up to date with anything we have planned in the future.

If you are interested in providing feedback and/or being added to the Newsletter mailing list then please email

communitypainpeers@touchstonesupport.org.uk  to let us know.

Our aim is to build and grow our little team of volunteer peer supporters as we recognise how invaluable peer support is. If you would be interested in volunteering, we’d love to hear from you. We are currently developing a new volunteer programme and hope to start recruiting in the new year, so keep an eye out for opportunities which will be advertised!

Keep an eye out for changes being made to the website over the next few months, where we will upload peer support team profiles, videos and volunteering opportunities in the future. 

If you’d like to contact Katie directly, please email katie.toulmin@nhs.net or call 07443177038

Useful Links

The pain toolkit

Explaining pain

The pain CD

Live well with pain    

Retrain pain

The Pain Revolution by Professor Lorimer Mosely

Pain and me

We are currently reviewing our website to make all content accessible. If you are looking for a download, such as a leaflet or booklet that you can no longer find, please contact the service on the details above.

We want to hear from you!

We want you to have your say about your experience with the Community Pain Service as a service, we want your honest feedback. This information will be used to help improve the service in the future so your contribution will make a difference to others. Your feedback may be captured through questionnaires/surveys and/or online/face-to-face monthly Service-User Forums and feedback can be made anonymous.

What to do if you need to speak to someone urgently...