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COVID19 service update:

The Community Neurological Rehabilitation Team is now seeing urgent and routine patients. At the moment patients will receive a defined episode of care of three months and up to six sessions per profession. Some consultations may take place remotely and patients may be offered a telephone or video consultation instead of a face to face appointment if this is appropriate. At the moment we do have long waits which we are working on, so, while you are waiting for your appointment if you have experienced a deterioration in symptoms or have any concerns please contact us on 0113 855 5082.    

The Community Neurological Rehabilitation Centre

The service is running spasticity and therapy clinics however, we remain closed to inpatient admissions and day service patients.  Anyone requiring these services will be seen in an alternative venue as advised.

We are not currently accepting any referrals for out of area patients.

Community Stroke Rehabilitation Service

This service is operating as usual. Some consultations may continue to take place remotely and you may be offered a telephone or video consultation instead of a face to face appointment if this is appropriate.

The Community Neurological Discharge Team

The team continues to see patients referred by the hospital but may have to provide slightly fewer sessions from the therapists due to the demands on the service. Therapists from the team will discuss this with the patients when they accept the referral. Professionals can contact the service if they would like more information. Some consultations may take place remotely and patients may be offered a telephone or video consultation instead of a face to face appointment if this is appropriate.

Community Neurological Rehabilitation Service Redesign:

This includes: 

  • The Community Neurological Rehabilitation Team
  • The Community Neurological Rehabilitation Centre
  • The Community Neurological Discharge Team 

The service has been working hard to see how we can use the resources that we have as efficiently and effectively as possible to meet the needs of our patients.

Our goals are:

  • To provide high quality and timely neurological rehabilitation to Leeds patients.
  • To ensure timely equitable access for all that need community neurological rehabilitation
  • To work collaboratively with partners in Leeds

We have consulted with patients, carers, staff, other services that we work with and looked at all the resources we have available to us. We would like to thank those who have shared their thoughts and experiences with us. Please see below what people have said and how we hope to use this to inform the service redesign.

More information about what the new service will look like will be shared on this website in the Autumn.

You Said We Heard

You said

What we are doing

How can you help? (How can patients, carers, members of the public help)

Information

People want better communication whilst waiting to access the service, including length of expected waits and details of the service offer and what people/carers can expect.


Following discharge, people didn’t like the word ‘final review’ and would like the option of support post discharge.

We will look to improve our communication with people on the waiting list and ensure we use a variety of formats to do that.

We will provide details of the current service offer, and set expectations regarding elements to be delivered at home / in other community settings.

We will not use the word ‘final review’. We will ensure that patients and carers are sign posted to voluntary third sector organisations and peer support groups once therapy/treatment has finished for further information and support. Digital tools will also be provided which will help with future self-management.

Let us know what a “good discharge” would look like to you. We are always keen to hear feedback as your views and experiences can help shape the service. In addition, any ideas on which support groups/organisations you would find useful are always welcome.

Accessibility

If inpatient rehabilitation is needed people prefer to be seen in local hospital and community settings rather than big general city hospitals. 

People need to be given a range of options of how to access the service

A location/offer for in-patient stays for rehabilitation has not been identified yet, but we will not be looking at a big general city hospital, for provision of this.

We want to make the referral process as easy as possible.

The referral form will be reviewed to ensure it is accessible and easy to use for health care professionals and that they are aware of the service. 

For re-referral we will provide you with clear information on how to come back to the service if you need to following discharge.

Talk to the service about the re-referral process once you are discharged and the range of options available.

Make sure you keep hold of the information to contact the service if you need to.

Quality of service

Carers, friends, and families want to be more involved and would value more flexible visiting times for inpatient stays (if inpatient rehabilitation is needed). We will look at doing some more engagement around this area to identify specifically what carers, friends and families value about being more involved and how we can improve inpatient stay experience when this is needed. 

Help us identify what being involved looks like to you to help shape this.

Equality of access

People from diverse communities need more assurance about what to expect before they arrive for their in-patient stay and / or enter the service.

A detailed communication plan around the new service model will be drawn up which will include a variety of forums/formats/languages to ensure it is accessible to all. 

We will also look at the idea of filming a video of what to expect which can be sent to patients.
Get involved and tell us what you think of our communication plan and help shape what the video could include.

We offer rehabilitation for adults with neurological conditions. This includes advice, therapy and treatment for a patient and advice and support for their family, carers and other professionals.

The objectives of the service are to:

  • To provide specialist rehabilitation through inter-disciplinary assessment and treatment programmes.

  • To reduce the impact of specific impairments or complications associated with neurological conditions

  • To provide an appropriate level of support for people to gain, retain and/or regain independence and function

How we work

We have four teams:

  1. The Community Neurological Rehabilitation Team: aims to provide rehabilitation in a community setting, this can include home, leisure or community facilities, work place, educational facilities or a healthcare setting. This includes support for young adults with neurodisability moving from child to adult services.

  1. The Community Stroke Rehabilitation Team: provides a seven day service, delivering early stage stroke specialist rehabilitation in the community for up to twelve weeks. The team aims to maximize rehabilitation potential and improve quality of life for people following a stroke and support their carers.  A multi-disciplinary team work with people who have had a stroke or subarachnoid hemorrhage to achieve their rehabilitation goals in their home and thus reducing their length of stay in hospital.

  2. The Community Neurological Rehabilitation Centre: This is a regional inpatient unit for people with complex needs due to a neurological condition who are medically stable. It provides multi-disciplinary rehabilitation through planned short stay admissions. The centre also offers a day service for people who need more intensive multidisciplinary input than is available in the community but don't need overnight admission.

  3. The Community Neurological Discharge Team: The team provides support for patients with traumatic brain injury to make sure they have a smooth transfer from hospital to home. We aim to meet all patients on the ward before discharge then again within 48 working hours of discharge home. We will work closely with each patient's hospital therapists to plan a safe and successful discharge, providing rehabilitation, advice and guidance in the early days as patients adjust to being back home.

We aim to provide an excellent service user and carer experience. We work in partnership with our service users to deliver a patient-centred, high quality service, and aspire to deliver a helpful and friendly service, treating everyone with dignity and respect.

  • Community Neurological Rehabilitation Service (CNRS) aims to provide an excellent service user and carer experience. We work in partnership with our service users to deliver a patient-centred, high quality service. We aspire to deliver a helpful and friendly service and to treat everyone with dignity and respect.

    We work with service users to maximise independence and quality of life through multi-disciplinary neurological rehabilitation. We offer a specialist service providing assessment, advice, therapy, treatment and offer information and support to service users, family, friends and carers.

    We provide inpatient and day patient services at the Community Neurological Rehabilitation Centre (St Mary’s Hospital) and outpatient and community services at a variety of locations in Leeds, including service users’ homes.

    This webpage provides a summary of what we do, but please contact us if you have any questions or would like more information. If we cannot help, we will do our best to direct you to someone who can.

    There are three main parts to our service:

    Community Neurological Rehabilitation Team

    The aim of the team is to provide rehabilitation in a community setting for those with a neurological condition who have a Leeds GP. Service users are seen in the most appropriate location which may include home, leisure or community facililities, workplace, educational facilities and healthcare premises. The team provide rehabilitation in order to optimise function, participation, quality of life and independence. This includes support for young adults with neurodisability making the transition from paediatric to adult services.

    Community Stroke Rehabilitation Team

    The Community Stroke Rehabilitation Team provides time limited specialist early stage rehabilitation for people with a new diagnosis of stroke or subarachnoid haemorrhage being discharged from hospital into the community. Unlike the other parts of the service, referrals can only be accepted directly from the discharging hospital. The service aims to maximise rehabilitation potential and improve quality of life for people who have had a stroke and their carers.

    Community Neurological Rehabilitation Centre (day service and inpatient service)

    The regional inpatient service provides multidisciplinary rehabilitation through planned short stay admissions for people with complex needs due to a neurological condition who are medically stable.

    We also offer a day service for service users with a neurological condition who do not require overnight admission, but who need more intensive multidisciplinary input than that available in the community setting.

    Both services provide treatment and support to improve quality of life and to help achieve or maintain desired potential and independence.

  • The Community Neurological Discharge Team (NDT) is a small team of community Occupational Therapists and a Rehabilitation Assistant. We are part of the Community Neurological Rehabilitation Service based at St Mary’s Hospital.
    If you have had had an acquired brain injury we are here to support your move back home. We can provide input to you if you have a Leeds GP and are over the age of 16 (and have left high school).

    We will work closely with your hospital therapists to plan a safe and successful discharge, providing rehabilitation, advice and guidance in the early days as you adjust to being back home.

    We aim to meet you on the ward before you go home and then we will visit you within 48 working hours of your discharge.
    We will work with you and your close family/carers/relatives for up to 8 weeks once you are home, working towards goals that are meaningful to you. We will also provide education to you and your family/support network to help you come to terms with your newly acquired brain injury.

    The service is available Monday to Friday between the hours of 8am and 4pm.

    We have close links with other local services and will support you to access them if needed. At the end of our input we can also refer to other teams so that you can work towards your longer term goals.

    Useful links

    Welfare Rights Unit - Impartial advice on benefits claims and appeals.
    0113 376 0452

    Citizens Advice Bureau
    0113 223 440

    Adult Social Care - For help and advice on issues like homecare support, careers assessments, respite, equipment and more.
    0113 222 4401

    Headway - The brain injury charity is set up to give help and support to people affected by brain injury.
    0808 800 2244

  • Who do we see?

    People who…

    • Have had a stroke
    • Are medically stable
    • Are over 18 years old
    • Have a Leeds GP
    • Are referred from hospital
    • Can be safely cared for at home
    • Have rehabilitation goals that can be met in 12 weeks

    How can we help?

    • By working with you on specific goals
    • Supporting the transfer of care from hospital to home
    • Aiming to improve your quality of life
    • Aiming to increase your independence
    • Providing advice for you and your carer
    • Working together with other services

    What can we offer?

    Stroke rehabilitation within your own home. The team is made up of professionals with specialist knowledge, experience and skills.

    This includes:

    • Physiotherapy
    • Occupational Therapy
    • Speech and Language Therapy
    • Dietetics
    • Nursing

    We also have technical instructors and rehabilitation assistants who can support you to work towards your goals.

    How long will we be involved?

    • We can provide up to 12 weeks of input 
    • The team meet regularly to discuss your goals and how best to support you.
    • Once your episode of care is complete, we will write to you, your GP and others involved in your ongoing care.
    • If you require further support, we can refer or signpost you to other services that can help.

    Appointments:

    Please contact the team if you are unable to keep your appointment, giving at least 72 hours notice. If appointments are not kept, your episode of care will be ended. 

    Waiting list:

    Following referral, you may be added to a waiting list. You can contact the team for an update about how long
    you are likely to wait.

  • You have been invited to attend an appointment, group or session at St Mary’s Hospital with the Community Neurological Rehabilitation Service.

    If you can attend sessions, groups or clinic appointments via your own transport, taxi, private car, bus or use the Access bus you will be expected to get to this appointment using one of these options.

    If for any reason you are struggling to get to your appointments please contact and discuss this with us.

    Here is some useful contact information to support you with getting to your appointment.

    Getting to St Mary’s Hospital

    The following may help you:

    • Bus 16/16a Wheelchair Accessible -Seacroft to Pudsey. every 10 minutes Monday—Friday daytime. Stops directly outside the Hospital on Green Hill Road. www.wymetro.com
    • Access bus if appropriate - Access Bus 0113 348 1903
    • Leeds Alternative Travel will take you door to door for a small charge 0113 386 8880
    • Contact Leeds Directory 0113 391 8333 for information about local travel schemes. www.leeds.gov.uk
    • If you receive the high rate mobility component of the Disability Living Allowance/ PIP (PIP enhanced rate) or War Pensioner Mobility Supplement you must use this to pay for your transport costs to clinic.

    Travel costs

    If you are on a low income you may be able to claim for a refund of your travel costs under the Healthcare Travel Costs (HTC) scheme.

    To find out if you are eligible and how to claim, visit the NHS Choices website www.nhs.uk or phone 0845 610 1112 to order a paper copy of the travel claim form and eligibility document (HC, HC11).

    You can ring the Patient Experience Team in Leeds.

    Please keep receipts and records of your journeys.

    Change in circumstances:

    If your situation changes and you are unable to attend your sessions, groups or clinic appointments please contact the Community Neurological Rehabilitation Service .

    Parking

    There is limited parking available on the St Mary’s Hospital site for patients, staff and visitors. Parking is free.

  • What is the Neuro User and Carer Forum?

    The Neurology User and Carer Forum was formed in January 2009 and is one of the mechanisms that the service uses to engage with people affected by a neurological condition such as:

    • Multiple Sclerosis
    • Stroke
    • Cerebral Palsy
    • Parkinson’s
    • Brain Injury

    Our aim is to enable service users and carers to work with Leeds Community Healthcare NHS Trust to influence, improve and develop community neurology services to benefit service users and their families.

    The forum’s input includes:

    • Feedback on forms and letters
    • Gather views and comments on future service changes
    • Support with improving the hospital environment
    • Support network for members

    Who is in the group?

    The group is made up of service users of Leeds Community Neurological Rehabilitation Services, their carers and is supported by service staff. Members can attend the meetings and/or be a virtual member where your feedback will be read out at the meetings. So, if you are unable to attend you can still keep in touch with the group by receiving notes from the meetings and letting staff know your comments.

    What does the group do?

    The group meets regularly for two hours in the early afternoon at the Community Neurological Rehabilitation Centre in Armley, Leeds. 

    As a member of the group you will:

    • Work with your local NHS
    • Help develop and improve services
    • Contribute as much or as little as suits you
    • Meet new people with an interest in neurology services
    • Learn about the Community Neurological Rehabilitation Service in Leeds

    Are you interested?

    If you would like more information or are interested in joining our group, please email us at communityneurologicalrehabilitation@nhs.net or call the Administration Team on 0113 855 5082, Monday to Friday 8.30am to 4.30pm.

  • Why is fluid intake so important?

    Most of the human body is made up of water. It is lost all the time from the body.

    Therefore it is important to maintain an adequate fluid intake or you may become ill through dehydration.

    Dehydration causes many symptoms, including:

    • Thirst
    • Headaches
    • Dizziness
    • Confusion
    • Fatigue

    It can also cause continence problems, such as:

    • Constipation
    • Increased risk of urine infections
    • Irritation of the bladder
    • Increased risk of catheter blockage

    How much should we drink?

    The general recommended amount to maintain health is 1½ litres daily or 2½ pints.

    This amount may have to be varied depending on certain circumstances:

    • If you have a temperature
    • If you are eating a fibre rich diet
    • Certain medications require more fluids to work efficiently
    • In hot weather due to sweating 
    • Depending on size / body weight

    Types of fluids

    Any type of fluid can be counted including coffee, tea, water and fruit juices.

    Certain foods can also be helpful to increase fluid intake, such as soup, jellies and custards. 

    Too many fizzy drinks, coffee, tea and alcohol should be avoided as these can irritate the bladder and may cause symptoms of frequency and urgency.

    Caffeine

    Caffeine is present in many types of fluids, including:

    • Tea 
    • Coffee
    • Cola
    • Some herbal teas

    Drinks that don’t irritate the bladder

    • Water
    • Milk
    • Decaffeinated tea
    • Decaffeinated coffee
    • Herbal teas
    • Milk shakes
    • Diluted fruit squash
    • Cranberry juice

    Drinks that can irritate the bladder

    • Tea (caffeinated)
    • Coffee (caffeinated)
    • Hot chocolate
    • Green tea
    • Blackcurrant juice
    • Fresh citrus fruit juices
    • Cola
    • Fizzy drinks
    • Alcohol
    • Tomato juice

    Reported benefits of healthy fluid intake

    • Increased alertness
    • Increased energy
    • Fewer falls
    • Less dizziness
    • Reduction in laxative use
    • Reduction in urinary infections
    • Easing of bladder symptoms
    • Fewer interrupted nights
    • Better quality sleep

    Some ideas to increase fluid intake

    • Take regular small amounts of fluids rather than one big volume
    • Drink fluids you enjoy
    • Use visual prompts and reminders if you have a poor memory
    • Drink a whole glass of water when taking medication
    • Use diet to increase the fluid intake, with milky puddings, jellies and soups
    • Fresh fruit can also increase fluid intake

Tel: 0113 855 5082

communityneurologyservices@nhs.net

Community Neurological Rehabilitation Service

St Mary’s Hospital

Green Hill Road

Leeds

LS12 3QE

Referrals 

Referrals can be made by any health or social care professional. We will also accept self-referrals but only if you have previously been referred to us by a health care professional.

The Community Stroke Rehabilitation Team is only able to accept referrals directly from the discharging hospital. If the referral is not appropriate for us, we will try to suggest an alternative.

Referral resources

Referral Form

Full service offering and referral details

Useful links and contacts

The Stroke Association 0303 303 3100 - Helpline to support those affected by stroke.

Leeds Community Equipment Services 0113 378 3300 - providing specialised equipment.

Care and Repair 0113 240 6009 - Independent home improvement agency

Adult Social Care 0113 222 4401 - Support from Leeds City Council

Wheelchair Services 0113 206 3855 - Information, advice and assessment related to using a wheelchair.

William Merritt Disabled Living and Mobility Centre 0113 350 8989 - Information, advice and assessment on equipment and practical aspects of daily living for people with disabilities.

The Welfare Rights Unit 0113 376 0452 - Impartial advice on benefits, claims and appeals.

Carers Leeds 0113 380 4300 - Information, advice and support for adult carers across Leeds.

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