Local Authority resources
Leeds City Council have produced a number of One Minute Guides (OMG) to their services. Some of the most relevant are listed here, or visit https://www.leeds.gov.uk/one-minute-guides for a full list.
- Portage leaflet https://www.portage.org.uk/barnardos-leeds-portage-service
- Children and Family Act / Education Health and Care Plan (EHCP)
- SCOPE Cluster Working
- SCOPE Sleep right https://www.scope.org.uk/family-services/
- Leeds Local Offer
- Early Help
- Early Start Service
- EYFFI (Early Years Funding For Inclusion)
- FEEE (Free Early Education Entitlement)
- Safe Sleeping
- School Admissions
- SEND IASS (Special Educational Needs and Disabilities Information and Support Service)
- SENIT (Special Educational Needs and Inclusion Team)
- Short Breaks
- Supporting Pupils at School with Medical Conditions
- Third Sector
Local Support Groups
Sunshine and Smiles |
https://sunshineandsmiles.org.uk/ Mob: 07725 041 601 |
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Hawthorn Family Support Centre (Mencap) |
The Vinery Centre, 20 Vinery Terrace, Leeds, LS9 9LU https://www.leedsmencap.org.uk/how-we-can-help/families-and-siblings/hawthorn-family-support/ Tel: 0113 235 1331 |
Bradford Down Syndrome Training and Support Service Ltd |
http://www.downsyndromebradford.com/ Tel: Wendy Uttley 01274 561 308 |
Wakefield and District Down Syndrome Support Group |
www.downsyndrome-wakefield.net Tel: 07814 367 594 |
SNAPS (Special Needs and Parent Support) |
Email:dean@snapsyorkshire.org or 07964 847 775 (Penny Field site) jo@snapsyorkshire.org or 07738 287 024 (Broomfield site) Mobile: 07964 847 775 |
The Down’s Syndrome Association (DSA) have produced a number of parent information leaflets which can be found on their website here https://www.downs-syndrome.org.uk/about-downs-syndrome/pregnancy-and-baby/ and here https://www.downs-syndrome.org.uk/about-downs-syndrome/lifes-journey/parent-and-family-carers-well-being/
The Down Syndrome Medical Interest Group (DSMIG) UK have a useful information and resource section on their website for further information on health surveillance and health issues - https://www.dsmig.org.uk/
Some families may be entitled to claim certain benefits. Further information is available at https://www.gov.uk/browse/benefits. Your health visitor will be able to support you to look at what is right for you.
Family information
The Family Information Service |
https://familyinformation.leeds.gov.uk/ Tel: 0113 247 4386 |
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Leeds SEND Information Advice Support Service |
Technorth, 9 Harrogate Road, Chapel Allerton, Leeds, LS7 3NB https://sendiass.leeds.gov.uk/ Helpline: 0113 378 5020 (Mon-Fri 10am to 3pm) |
Leeds Local Offer |
https://www.leeds.gov.uk/and search for ‘local offer’ |
Leeds City Council Inclusive Sport Programme |
https://active.leeds.gov.uk/classesandactivities/sports then look for the ‘Disability Sports’ section Customer Contact Centre: Tel: 0113 378 8001 Email: ActiveLeeds@leeds.gov.uk |
Changing Places |
https://www.leeds.gov.uk/ and search ‘changing places’ |
National Resources
Down’s Syndrome Association https://www.downs-syndrome.org.uk/
Down’s Heart Group https://dhg.org.uk/
Down Syndrome Educational Trust https://www.down-syndrome.org/en-gb
Babywalkers leaflet produced by Bliss – the premature baby society https://www.bliss.org.uk/ Search for ‘babywalkers’
Contact a Family https://contact.org.uk/
