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Gross motor skill information for children with Down Syndrome

What are motor skills?

Gross motor skills describe the way your child moves around, e.g. by rolling, sitting, crawling, standing and walking, and their abilities within these positions.

Fine motor skills describe how your child uses their hands, both separately and together and how this affects their self-care skills and independence, e.g. playing, feeding, dressing and writing.

Development in children with Down Syndrome

  • Most children with Down Syndrome follow the same pattern of physical development as any child.
  • Being included in every day play and family activities will help children meet their motor milestones at their own pace without any specific physiotherapy input.
  • Children with Down Syndrome are usually delayed in all areas of their development, e.g. gross and fine motor skills, communication and learning.
  • If learning and understanding are very delayed, this affects how a child learns to move from one position to another and causes a delay in physical skills as well.
  • All children develop differently; some children may achieve their motor skills at similar ages to children without Down Syndrome and some may be very delayed.
  • Although the activities in each section of the information below are written in a sequence, it is not essential that your child achieves one before they move on to the next activity.
  • This is especially true in the early stages of development where it is important to spend time in a variety of positions to develop different skills as each position has an effect on the other.
  • For example, at around six months old, you can spend a lot of time playing with your child on the floor and can practice rolling alongside playing in a supported sitting position.

Babywalkers

Physiotherapists DO NOT recommend babywalkers or bouncers for any children, particularly those with developmental delay and altered muscle tone.

Why not?

Babywalkers place your child in a position which is not quite sitting or standing. They enable movement without your child having the proper awareness or control of their body. Development is a progressive sequence and at each stage, children learn different aspects of controlling their body which gradually come together to enable independent walking. Please see our separate leaflet about babywalkers for further information.

  • Children with Down syndrome have symptoms that contribute to fine and gross motor delay. These include:

     

    Low muscle tone

    Children with Down Syndrome tend to have quite floppy muscles (hypotonia or low muscle tone). This makes it harder for them to move and can affect all aspects of their physical development.

    For example, in lying, their arms and legs will often rest flat on the floor or it may be difficult for them to learn to pull into a standing position.

    Although the hypotonia will never disappear completely, with appropriate stimulation and good positioning, your child will develop movement skills following a typical, but delayed pattern.

     

    Hypermobility

    Children who have low muscle tone can be very flexible. They are often described as having lax ligaments, hypermobility or being double-jointed. This is because the muscles do not hold the joints together as tightly as in people with normal muscle tone. In most cases, although hypermobility is a factor in gross motor delay, it does not have any serious effects.

    This extra flexibility is usually most noticeable in the fingers, elbows, ankles and knees. It can make it hard to control the position of the joints. People with hypermobility can find it difficult to know where their body is in relation to their environment, e.g. when walking on slopes, different surfaces, where obstacles / furniture are.

     

    Muscle strength

    Muscle strength of children with Down Syndrome can be reduced compared to other children of the same age. This can contribute to gross motor delay as children lack the strength and endurance (ability to keep going) to learn new skills quickly.

    Muscle strength and endurance will improve as your child becomes more active, but children with Down Syndrome may continue to be less co-ordinated than their peers.

    Children with Down Syndrome often have shorter arms and legs than other children, which can make some physical activities harder, e.g. when they are learning to sit and want to balance with their hands.

     

    Turning away from support

    Reaching between two pieces of furniture or bridging gaps- place two pieces of furniture close together, with your child stood at one piece of furniture encourage them to reach across for toys or to step across to the other piece of furniture.

     

    Squatting

    • When standing encourage your child to squat down to the floor to pick up a toy.
    • Your child may initially hold on and reach down with one hand while standing.
    • Their legs may stay straight, and they may fall down.
    • As your child's muscle strength and control improves, they will start to bend their knees to reach further, then rise back up to standing.

    Independent standing

    • Place your child in standing holding your hands away from a support, then once they have their balance gently let go of their hands and see how long they can stand for.
    • Encourage lifting both hands off a support to reach for toys.
    • Play games encouraging your child to balance while you count or sing a song etc.

    Cruising

    • Position your child at a firm support e.g. sofa, coffee table which is roughly at chest height.
    • Your child should stand upright, facing forwards and hold on with both hands.
    • You can give support at you child's hips gently guiding their weight to shift onto one leg to help your child free the other leg to step sideways (see picture).
    • You may need to help your child position the leading leg out to the side, then guide them across to that leg to enable them to step the other leg across in the same direction.
    • Practise this in both directions.

    References

    • Winder PT (1997) Gross Motor Skills in Children with Down Syndrome; A Guide for Parents and Professionals, Woodbine House Inc.
    • Diamant RB (1992) Positioning for Play: Home Activities for Parents of Young Children, Therapy Skill Builders
    • Crombie S (1997) Physiotherapy Home Programmes for Children with Motor Delay, Winslow
  • Local groups

    Hawthorn Family Support Centre (Mencap)
    The Vinery Centre, 20 Vinery Terrace,
    Leeds LS9 9LU
    www.leedsmencap.org.uk/support-for-youngpeople/hawthorn-family-support-centre

    Tel: 0113 235 1331
    Email: info@leedsmencap.co.uk

     

    Bradford Down Syndrome Training and Support Service Ltd
    https://www.downsyndromebradford.com/
    Tel: Wendy Uttley 01274 561 308
    Email office@downsyndromebradford.co.uk


    Wakefield and District Down Syndrome Support Group
    www.downsyndrome-wakefield.net
    Tel: 07814 367 594
    Email: info@downsyndrome-wakefield.co.uk

     

    Sunshine and Smiles
    https://sunshineandsmiles.org.uk/
    Tel: Ailith Harley-Roberts 0113 226 8457
    Mob: 07902 054 355
    Email: hello@sunshineandsmiles.org.uk

     

    SNAPS (Special Needs and Parent Support)
    https://www.snapsyorkshire.org/
    Email: jo@snapsyorkshire.org
    Mobile: 0796 484 7775

     

    Little Hiccups
    Tel 07831 230 741

    https://www.littlehiccups.co.uk/

    Email: info@littlehiccups.co.uk

     

     

    Parent support - national organisations

    Down Syndrome Association
    https://www.downs-syndrome.org.uk/

    Down Syndrome Educational Trust
    https://www.down-syndrome.org/en-gb/

     

    Babywalkers leaflet produced by Bliss – the premature baby society

    https://apcp.csp.org.uk/documents/parent-leaflet-babywalkers-are-they-necessary-updated-2020

    Search for “babywalkers”

     

    Contact a Family

    https://contact.org.uk/

     

     

    Family information

    Family Information Service

    Service providing information on a range of topics including childcare and SEND for parents and carers of children and young people.

    https://familyinformation.leeds.gov.uk/

     

    Leeds SENDIASS

    Support children and young people with special educational needs and disabilities (SEND) and their parents and carers to help with their related concerns or questions.

    https://sendiass.leeds.gov.uk/

    sendiass@leeds.gov.uk
    0113 3951 200

     

    Leeds Local Offer

    Provides information for children and young people with special educational needs and disabilities (SEND) and their parents or carers in a single place. It shows families what they can expect from a range of local agencies including education, health and social care.
    https://leedslocaloffer.org.uk/#!/directory

     

    Leeds City Council Sport and Active Recreation Programme for Disabled People
    Provides information on activities and classes available in the local area

    https://active.leeds.gov.uk/classesandactivities/sports/disability-sport

    Email: glenn.holdsworth@yorkshiresport.org

  • General information

    • Movement skills learned in lying are the building blocks of more complex movements such as sitting, standing and walking.
    • Use only the positions your child is ready to use.
    • A “little and often” approach works well for harder positions such as tummy-lying, but make sure your child has plenty of time in between where they are lying in an easier position.
    • Use activities and toys which are appropriate for your child’s developmental age.

    Younger babies like black and white or contrasting colours, mirrors, faces and rattles.

    Older babies like noisy toys, light and sound toys and rattles.

     

    Supine (lying on the back)

    • The first position children learn to control is lying on their back.
    • This is important because your child has a lot of support while they learn to move their head, arms and legs and develop more co-ordinated movements.
    • As your child learns to lift their head, arms and legs up, they are developing their muscle control.

    Sequence

    • Head to midline.
    • Hands to midline.
    • Lifting arms.
    • Lifting legs.
    • Lifting arms and legs together.

     

    Early development – head and hands to midline

     

    developmental delay 14Position

    • Reclined lying.
    • Support head / shoulders on pillow.

    Encourage

    • Head in middle.
    • Arms forward.
    • Hands together.

    Play ideas

    • Toys / people in midline.
    • Watching toys move side to side.
    • Bracelets / toys on child’s feet / hands.
    • Eye contact / interaction - making faces / singing / clapping.

     

    Lifting arms or legs

    developmental delay 10Position

    • Rolled up towel under shoulders/ head to bring shoulders forward.
    • Rolled up towel under knees.

    Encourage

    • Head turning to each side.
    • Lifting arms and legs from floor.
    • Kicking legs / reaching for knees.

    Play ideas

    • Reaching for toys above and to sides.
    • Using a play gym to encourage lifting arms and legs from the floor.
    • Toys / bright socks etc on feet.

     

    Lifting arms and legs together

    developmental delay 17Position

    • Body flat on floor, pillow under head if required.

    Encourage

    • Lifting head from floor.
    • Head turning to each side.
    • Kicking legs / reaching for feet.
    • Lifting bottom up from floor.

    Play ideas

    Try this after nappy changing or any time you pick your child up from the floor or cot.

    • Reaching for toys.
    • Play gym.
    • Toys / bright socks etc on feet Songs.
    • “This little piggy”.
    • “Head, shoulders, knees and toes”.
    • “Wind a bobbin” (with hands or feet).

     

    Side-lying

    developmental delay 18

    • Side-lying helps your child to bring their arms and legs together.
    • They may find it easier to focus on and play with toys in midline.
    • It helps your child feel the movements needed for learning to roll.

    Position

    • Small cushion under top knee to support leg.
    • Encourage shoulders forwards.
    • Hands together.
    • Bend top leg to help balance.
    • Place bottom leg straighter.

    Play ideas

    • Toys in both hands.
    • Rattles, bells.
    • Dangle toys from above in child's line of vision.
    • Mirror.

     

    Rolling

    developmental delay 06Rolling front to back often comes before back to front

    • Support your child at the hips.
    • Slowly guide your child over to one side from their hips.
    • Help them move their arm so it isn’t stuck under them.

    Rolling back to front

    • Elbow tucked into side in the direction they will roll.
    • Place toys to that side to encourage head turn.
    • Hold child’s opposite leg with the hip and knee bent and slowly guide on to their side. Give your child time to join in.
    • Continue guiding them on to their tummy. You may need to give a little lift at the shoulder they are lying on to help them roll all the way.
  • General information

    • Movement skills learned in lying are the building blocks of more complex movements such as sitting, standing and walking.
    • Use only the positions your child is ready to use.
    • A “little and often” approach works well for harder positions such as tummy-lying, but make sure your child has plenty of time in between where they are lying in an easier position. 

    Prone (lying on tummy)

    • Prone is an important position for developing head control, shoulder control and moving weight from one arm to the other in preparation for crawling.
    • As children learn to push up on their arms, they begin to take more weight on their hips, which helps develop control of the hip muscles as well.
    • Your child will be able to look around them more as they learn to lift their head for longer.

     

    Sequence

    • Lifting head with body fully supported.
    • Propping on elbows.
    • Propping on hands.
    • Reaching for toy with hand on surface.
    • Reaching for toy in the air.
    • Pivoting on the spot.

     

    Lifting head with body fully supported

    developmental delay 03High support position

    • Lying on your tummy with support around chest.
    • Gently lift child’s chest up.

    Encourage

    • Arms forward.
    • Lifting head in midline.
    • Weight bearing on elbows.
    • Little and often.

    Play ideas

    • Eye contact with adult (lie down in front of your child).
    • Smiles.
    • Funny faces.

     

    Propping on elbows

    developmental delay 24Medium support position

    • On floor, rolled up towel under chest.

    Encourage

    • Arms forward.
    • Lifting head in midline.
    • Weight bearing on elbows.
    • Reaching forwards with one arm on floor level e.g. for rattle or toy.

    Play ideas

    • Touchy-feely mats.
    • Water filled mats.
    • Knocking down bricks.
    • Looking in mirror.
    • Looking at books.

     

    Propping on elbows

    developmental delay 16Minimal support position

    • As time goes by and control increases, remove towel.

    Encourage

    • Arms forward.
    • Lifting head in midline.
    • Supporting themselves on their forearms.
    • Reaching forwards and up with one arm at a time.

    Play ideas

    • Touchy-feely mats.
    • Water filled mats.
    • Push and go cars / animals.
    • Rolling ball.
    • Looking in mirror.

     

    Propping on hands

    developmental delay 15Position

    • Lift child’s chest to help them put hands down then...
    • Hand on bottom to stabilise.
    • May need support at elbows initially.
    • Toys in front on floor level, then slightly raised.

    Encourage

    • Pushing up on both hands together.
    • Hands under shoulders.

    Progression from this could include reaching forwards or sideways with one hand and supporting themselves with the other.

     

    Play ideas

    • Water filled mats.
    • Knocking down bricks.
    • Rolling ball / drum.
    • Baby piano.
    • Lift the flap or touchy-feely books.
    • Push and go cars / animals.

     

    Pivoting / turning on the spot

    • Pivoting while lying on the tummy helps develop arm muscles, early crawling skills and independence.
    • Place toys to the side of child while they lie on their tummy.
    • Place your hand over child’s hips to prevent rolling, help them to move one arm at a time in the direction of the toy.
    • Practice going in both directions.
  •  General information

    • Sitting requires more balance, better control and increased strength of the tummy, hip and back muscles than lying.
    • Sitting gives your child a different view of the world and means they can use their hands more to explore toys.
    • Once your child can sit briefly on the floor, practicing sitting on a low box or small seat (where your child’s feet can fully rest on the floor) helps to develop trunk muscles, balance and putting weight through their feet, which is important for standing.
    • Some children will bottom shuffle, using their feet to pull themselves forwards in sitting. You do not need to stop them doing this, but still encourage practicing moving into a crawling position.

     

    Sequence

    • Pull to sit.
    • Sitting with support.
    • Sitting independently.
    • Sitting on a low chair / bench.
    • Moving in and out of sitting.

     

    Pull to sit

    developmental delay 02

    Parents are often concerned that they will pull too hard on their baby’s arms. If you feel like your baby is not joining in pulling up with you, go back to giving them more support. Keep trying, little and often as you will find sometimes they will be more active than others.

     

    Position

    • Lying on back (on pillow initially).
    • Support child’s shoulder and head with your hands (give as little support as needed).
    • Slowly bring child in to sitting (you’ll feel them actively join in the movement at different stages).
    • As child improves, move your hands to holding their upper arms, then their hands, Encouraging them to grasp your finger while you hold them. Further information about progressing moving from lying to sitting can be found below.

    Encourage

    • Head in middle.
    • Active tucking chin in and bracing shoulders (so you can feel your child pulling up on you).

    Play ideas

    • Singing.
    • Funny faces.
    • Silly hat / head band.

     

    Sitting with support

    developmental delay 05Position

    • Sit child on a firm surface and hold around their middle trunk, facing away from you or towards you.
    • As child gains more control, reduce your support to be lower down the trunk then at the hips.
    • Try sitting on the floor with your baby sitting between your legs. This way you will be able to support them at the sides and behind you, and still be able to reach round to look at books or toys.

    Encourage

    • Help child to prop with their hands on their thighs rather than the floor.
    • Bringing toys to mouth or to midline to bash.
    • Reaching for dangling toys.

    Play ideas

    • Toys within reach in front of them.
    • Mirror.
    • Play gym (in sitting).
    • Reaching for your face.

     

    Sitting independently

    Position

    • Start on firm surface, e.g. floor.
    • Place cushions around child.
    • May prop on one hand first then lift both hands - may prop hands on floor or legs.
    • Initially back may be rounded.
    • Legs slightly bent at knees and not too far apart.

    Encourage

    • Reaching for toys within reach e.g. in front of them, then to either side.
    • Sitting with straight back.

    Play ideas

    • Songs “Row, row boat”, “Wind a bobbin”.
    • Naming / pointing to body parts.
    • Mirror.
    • Piano.
    • Rolling ball.
    • Try sitting child on a gym ball, gently bouncing and rolling them in all directions, encouraging them to stay upright.

     

    Sitting on a low chair / bench (box sitting)

    developmental delay 19Position

    • Sit on a little chair or bench with hips and knees at 90° angles, thighs are fully supported on bench and feet are flat on the floor.
    • Legs together.
    • Supervise closely as they may fall forwards or back.
    • Sofa or low table in front to play on.

    Encourage

    • Sitting upright with straight back.
    • Turning to look over shoulder.
    • Reaching in all directions.
    • Sitting on chair with sides helps child prepare to push up to stand.

    Play ideas

    • Bubbles.
    • Batting balloon.
    • Looking at books.
    • Singing.

     

    Side-sitting

    developmental delay 21Side-sitting is important for developing control of turning the body. This is needed for crawling and walking.

     

    Position

    • Gently turn one leg so both knees pointing to the same side.
    • Propping on the hand on that side, help child reach in front and across.
    • Progress to both hands being down on the same side.

    Encourage

    • Initially, your child doesn’t need to stay in this position long. Encourage reaching for a toy placed further to one side, then they can bring it back to sitting midline to play.
    • Child starting to control own body and needing less support.
    • Reaching further for toys and up in the air.
    • Do little and often, frequently a difficult position.

    Play ideas

    • Toys within reach in front and across body.
    • Rolling ball, toy car.

     

    Moving in and out of sitting

    developmental delay 13Moving into sitting from lying

    • Start with child lying on their back.
    • Hold their RIGHT hand, encouraging child to hold on to you as well as you to them.
    • Gently guide them up and over to LEFT to push up on LEFT hand. You can place one hand on their LEFT hip so that they don’t roll over.
    • Allow time for child to join in with the movement and to push on their other hand - give support slowly and as little as possible.
    • Encourage lifting their head and tucking chin in while pushing up on one hand.

    Moving out of sitting

    • Into lying - sitting behind child, help them to go into side sitting then bend their elbow and lower to the floor.
    • Into crawling - help them go into side sitting then across into a crawling position (see crawling leaflet).
    • Avoid letting child lower themselves forward between their legs and “doing the splits” to get on to their tummy, as this position stresses the hip joints.
    • • Remember to practice to both sides
  • General information

    • Kneeling and crawling require more strength and coordination in your child’s arms and legs. This may take children with Down Syndrome longer to achieve.
    • Some children “bottom shuffle” instead of crawling. You should still continue to encourage your child to practice moving in and out of four-point kneeling and crawling when they are ready, and quite often they will crawl at a later stage.
    • Children with Down Syndrome often “bear” crawl i.e. crawling on hands and feet rather than hands and knees.

    Sequence

    • “Reach and roll” lying on tummy.
    • Pulling forwards with both elbows on floor (creeping).
    • Pulling forwards with one elbow at a time (commando crawling).
    • Supported four-point kneeling.
    • Moving in and out of four-point kneeling.
    • Crawling.

     

    Reach and roll

    • Children reach forwards with one arm, then roll over that arm, followed by reaching with the other arm then rolling over that side.
    • Place toys just out of reach to encourage them to stretch forwards.
    • Many children progress from this to pulling themselves forwards on their elbows (creeping).

    Creeping

    • Children often start moving by pulling forwards on their elbows, using both elbows together.
    • Your child may develop from this method to using one elbow at a time (commando crawling).

    Commando crawling

    This means leaning to one side, propped on their elbow while reaching forwards with the opposite hand and pulling along. Then repeating the cycle on the other side. This teaches your child about controlling part of their body while moving another part.

     

    Position

    • On their tummy, put your hand on the child’s bottom, and when they reach forwards with one hand, gently stop them from rolling onto their side and encourage them to lean to their other side and reach with that hand instead.

    Encourage

    • Child not to roll.
    • Pushing through feet - help them to learn this by placing your hands on the soles of their feet and push gently with alternate hands, encouraging your child to push back against you.
    • When reaching with the right hand, encourage pushing with right leg and vice versa.

    Play ideas

    • Place a favourite toy or treat out of reach to encourage then to reach one hand towards it.

    Supported four-point kneeling

    This means leaning to one side, propped on their elbow while reaching forwards with the opposite hand and pulling along. Then repeating the cycle on the other side. This teaches your child about controlling part of their body while moving another part.

     

    Positions of more support

    developmental delay 09

    • Place child in a crawling position, hands on the floor.
    • Rolled up towel or your leg under their tummy.
    • Hold child’s knees together and bent underneath them.

    Positions of less support

    developmental delay 25

    • Place child in a crawling position, hands on the floor.
    • Hold them around hips, and apply a gentle but firm downward pressure to maintain this position.
    • Aim for no support under their tummy.

    Encourage

    • Legs together and not too wide apart.
    • Not pushing back with legs.
    • Supporting themselves on their arms.
    • Later, encourage child to rock back and forth or side to side to develop balance.

    Play ideas

    • Water mat, small easy press toys.
    • Mirror.
    • Book.

     

    Moving into four-point kneeling

    developmental delay 08

    From sitting

    • Turn their legs gently so both knees are pointing the same way (side-sitting).
    • With your hands around their middle, gently guide child over to the side, encouraging them to put both hands down on the floor.
    • Gently help them lift their bottom up and across so they go into a crawling position.

    Initially, many children fall forwards on to their tummy so you may need to put your hand under their tummy at first, then take it away when your child is more confident.

     

    From tummy

    • Child starts on their tummy.
    • Encourage child to push up on their hands with arms straight.
    • Hold child around hips, gently guide their bottom up and forwards slightly so their knees come up under their hips.
    • Give light support under tummy if their arms tend to collapse.

     

    Moving out of four-point kneeling

    To start with, most children fall forwards on to their tummies to get out of a four-point kneeling position. This progresses to a controlled lower to the floor, and then they will begin to be able to go from a four-point kneeling position into sitting. Eventually, they will begin to crawl once they are confident rocking in different directions on their hands and knees.

     

    Moving from four point kneeling to sitting

    • Gently guide child’s hips to one side and then across onto their bottom (side-sitting).
    • Wait for them to “walk” their hands backwards so that they are balanced in sitting.
    • Practice to both sides.

     

    Crawling

    developmental delay 01

    • To crawl, your child will need to be able to shift their weight to one side and balance while moving an arm or leg on the other side while in four-point kneeling.
    • Your child will experiment by moving slowly, one limb at a time, and may fall on to their tummy frequently at first.
    • Some children crawl on one foot and one knee, but usually progress to crawling on both knees.
    • Trying to make your child crawl in a way they do not want to will frustrate both of you, so just continue encouraging them to move around as they choose.

    Position

    • Crawling position with hands under shoulders and knees under hips.
    • Knees not too wide apart.
    • Toys in front of one hand at a time.

    Encourage

    • Knees to be closer together (they are often wide apart initially).
    • Reaching forwards with one hand then the other.
    • The adult assisting can help child to move one leg forwards at a time as the child controls their arms.
    • Remember to move the leg on the same side as the arm that has moved!

    Play ideas

    • ‘Going on a bear hunt’.
    • Ball or crawling toy.
    • Any favourite toy or snack!
  • General information

     

    Sequence

    • Pulling to low kneeling at the sofa.
    • Lowering down from kneeling to floor sitting.
    • High kneeling.
    • Pulling into half kneeling at sofa.
    • Pulling to stand.
    • Sit to stand.
    • Standing.
    • Lowering down from standing.

    Note:

    • If your child is struggling to pull up on a sofa, try using other surfaces for them to pull up on.
    • E.g. a toy box, coffee table that may be firmer than your sofa, or have a lip at the edge to make holding on easier.
    • Placing objects that your child really wants e.g. treats or toys, up higher will help motivate standing.

    Kneeling at furniture

    developmental delay 22Position

    • Start with child sitting on their bottom, side on to the support.
    • Help / encourage them to move across in to side sitting.
    • Sofa roughly at chest height for child kneeling with toys on top.
    • Place child’s hands on to sofa then support at their hips and guide them across on to their knees.

    Encourage

    • Reaching in all directions.
    • Kneeling back on feet (low kneel) then later, kneeling up and reaching (high kneel).
    • Holding the position on their own.

    Play ideas

    • Cause and effect / light and sound toys.
    • Mirror.
    • Books.
    • Toys / treats on sofa or table (stable surface).

    Kneeling to sitting

    • Guide your child back to sitting on their feet, then guide their bottom down to the side into side-sitting.
    • Help your child turn their legs to move from side sitting to normal sitting.
    • Practise to both sides until your child decides which side they prefer.

    High kneeling

    Position 

    • Not leaning on surface with tummy, but holding on with hands.
    • Gradually reduce support you give for child to get in to and hold position.

    Encourage 

    • Turning and reaching to sides for toys.
    • Moving between low kneeling and high kneeling.
    • Reaching up to higher surfaces.

    Play ideas 

    • Reaching for toys.
    • Push along toys i.e. cars, balls.
    • Click clack track / ball run.
    • Posting / shape sorting toys.

    Pulling from half kneeling to stand

    developmental delay 20

    • Many children start pulling to stand by ‘hauling’ themselves up through their arms.
    • Moving through half kneeling is a more advanced skill and requires your child to shift their weight to one side whilst moving the other leg forwards to push through.

    Position 

    • Support child at hips while they are kneeling at the table / sofa.
    • Guide their weight over their LEFT leg while helping them bring their RIGHT leg forward (so foot flat on floor).
    • Push down gently over their RIGHT leg whilst starting to lift them from their LEFT hip to encourage your child to come into standing.
    • Remember to practice to both sides.

    Encourage 

    • Your child to join in the movement and push up.
    • Practise coming up and lowering through both sides until your child finds which way is easier.

    Play ideas 

    • Place favourite toys on surface.

    Sit to stand

    developmental delay 12

    Children can often find it easier to stand if they start with their feet on the floor, as opposed to just being “placed” straight in to standing. By joining standing on to a position they are already familiar with, e.g. sitting on your knee it can help them understand what is expected of them.

     

    Position

    • Standing from box sitting is easier than going from the floor e.g. from your knee, low box or child sized chair.
    • Table in front, toy just out of reach • Gently guide your child’s hips forwards and up so that their chest comes forward over their feet (“nose over toes”).

    Encourage

    • Your child to push up themselves.
    • The forward movement of their upper body over the feet.
    • Child’s hips, knees and feet should be in line in standing.
    • Supporting with hands on table rather than leaning on tummy.

    Play ideas

    • Posting games.
    • In/out of box games.
    • Nursery rhymes e.g. “Grand Old Duke of York”.
    • Piano.

    Standing

    developmental delay 04Position

    • Place toys that motivate your child on furniture around the room.
    • Initially your child will lean on their tummy and have their feet wide apart.

    Encourage

    • Feet shoulder width apart.
    • Hands to support rather than leaning on tummy.
    • Reaching to sides for toys - only just out of reach!
    • As balance improves, encourage holding on with one hand and reaching to the sides, behind them and turning to look over their shoulders.
    • To lower back from standing, help child bend one knee, lower back to half kneel then down to kneeling and on to floor.
    • Children often just “bump” down backwards and land on their bottom initially.

    Play ideas

    • Favourite toys at standing height.
    • Playing hide and seek - toys placed under cushions.
    • Cause and effect / push button toys.
    • Bubbles.
  • General information

    • Children with Down Syndrome sometimes take a long time to walk independently after they have learned to walk with support.
    • It is harder for them to balance and co-ordinate themselves, as they do not get the same sensory information from their bodies, particularly if their muscles are very floppy.
    • Every child is different so it is important to let your child guide you to the stage they are at. Persevere if they initially dislike an activity.
    • Motivation is vital, so using toys, treats, fun and games can all help encourage them to do the activity you want.
    • Physiotherapists DO NOT recommend babywalkers or bouncers for any children, particularly those with developmental difficulties or altered muscle tone.
    • Babywalkers have been proven not to enhance development and may actually impair it.

     

    Sequence

    • Turning away from furniture using one hand to steady themselves.
    • Independent standing.
    • Cruising sideways along furniture with two hand support.
    • Walking with two hand support.
    • Walking with a push-along toy.
    • Walking one or two steps between supports.
    • Walking with one hand support.
    • Walking a few independent steps.
    • Walking indoors on even surfaces.

    Note:

    • Children can miss stages out or they may stay at one particular level for a long time.
    • Work on a few activities together, e.g. using a push-along and walking between two supports.
    • Give lots of opportunities to play and move in a standing position.

    Footwear

    For most children with Down Syndrome, boot-style shoes from a good shoe shop will provide adequate support. Have your child’s feet measured properly for length and width. Avoid shoes which have very squashy soles and heel areas.

    If your child is extremely flexible, a physiotherapist may refer to Orthotics to assess for supportive boots to help control foot posture while they are learning to stand and balance. These boots are not needed indefinitely and are not prescribed routinely.

     

    Turning away from support

     developmental delay 23

    Encourage

    • Turning head to look for and reach a toy behind them.
    • Reaching between two pieces of furniture - place two pieces of furniture close together, position toys or treats on the other piece of furniture.
    • Gradually increase the distance between the furniture and encourage stepping between them.

    Squatting

    • Encourage squatting down from standing.
    • Child may initially hold on and reach down with one hand while standing.
    • Their legs may stay straight, and they may fall down.
    • As muscle control improves, they will start to bend their knees to reach further, then stand up again.

    Independent standing

    • Let your child stand holding your hands, then you let go of them, once they have their balance.
    • Encourage lifting both hands off the support to reach for toys.
    • Play games encouraging your child to balance while you count or sing a song etc.
    • They will usually be able to stand without support before they try standing up from the floor without holding on.

    Cruising

    developmental delay 11

    Position

    • Support (e.g. sofa) roughly at chest height.
    • Child should stand upright, facing forwards.
    • You give support at hips, guiding weight on to one leg to help your child free the other leg to step (see picture).
    • Help child position the leading leg out to the side, then guide them across to that leg. Allow, or help child to step the other leg across in the same direction.
    • Practice in both directions.

    Encourage 

    • Reaching sideways.
    • Stepping sideways, parallel to the surface.

    Play ideas 

    • Toys / treats positioned so your child has to reach for them.

    Climbing on and off furniture

    • Help your child lift one leg up on to the sofa, and hold it steady while they work out how to pull themselves up (they may need help for this!).
    • Most children feel more comfortable climbing down from furniture by going on to their tummy and sliding off until their feet touch the floor.
    • As they become more confident, they may try to slide off on in a sitting position.

    Walking with two hand support

    developmental delay 07Encourage 

    • Holding your child’s hands at or below their shoulder level.
    • Child holds on to your hands, with you standing in front.
    • Use a towel / broom handle / hula hoop for your child to hold on to as their confidence increases.

    Walking with a push along toy

    Position

    • Use a solid, stable push along toy, approximately chest height and wide enough so child can step between wheels.

    Encourage 

    • Child to pull themselves up on walker.
    • Steady walker so it doesn’t “run away” with your child.
    • Walking on carpet rather than laminate / tile to begin.
    • Straight lines, clear area to walk in.

    Play ideas

    • Playing shopping.
    • Collecting toys / bricks.
    • Pushing a baby or teddy.

    Walking between two supports

    Encourage

    • Stepping between 2 adults or an adult and sofa.
    • Start with only one step between supports, then increase.
    • Use treats or favourite toys to motivate child to step away from support.
    • Your child will probably prefer to walk towards you initially.
    • Give child lots and lots of encouragement to step away from the support.

    Walking with one hand support

    Encourage

    • Hold your child’s hand at or below their shoulder level.
    • Child to reach forwards for your other hand which you hold in front of them.
    • Start in front of child then progress to walking at their side.
    • Confidence is a key part of developing this skill and will take time to be gained - sometimes over a few months.

    Walking independently

    Encourage 

    • Gradually encourage child to let go of your hand.
    • Start by holding your hands just out of reach in front of child.
    • Start with just one step towards you or a support.
    • Increase distance as child’s balance improves.
    • Expect wobbly first steps, and child to fall into your arms after a couple of steps.
    • Many children hold their hands up high to help them balance.

    Walking on even surfaces

    • Practice walking on even surfaces - from house to car, in parks, supermarket, friend’s houses etc.
    • Child will learn to put their hands down to save themselves if they fall.
  • General information

    • These skills develop after your child is comfortable walking indoors and out. Your child will continue to progress so their walking becomes steadier, more confident and more mature looking.
    • Give lots of opportunities to walk on different surfaces, climbing under, over and through obstacles and explore new activities both with your help and by themselves.
    • Going to the park and helping your child experiment with how to climb up different ramps, steps and nets will be lots of fun and great for developing your child’s coordination.

    General advice

    • Motivation is really important when learning new skills. Make activities fun and exciting and join in groups with other children. Demonstrate new activities or movements and give lots of praise and encouragement when your child tries themselves.
    • You can try all of these activities whenever your child shows an interest in them. Do a variety of activities in short bursts to help prevent frustration or boredom.
    • Children with Down Syndrome can be prone to being over-weight as their activity levels can be lower than their peers. Walking, swimming, cycling etc are all excellent ways of maintaining fitness.
    • If you wish to speak to someone about suitable sports groups / swimming lessons etc, please visit Disability Sports Leeds: https://active.leeds.gov.uk/classesandactivities/sports/disability-sport.
    • Visit the The Association of Paediatric Chartered Physiotherapists website for information on accessible sport and activities for children: https://apcp.csp.org.uk/content/accessible-sport-activites-children.

     

    Footwear

    For most children, well-fitting, boot-style shoes from a good shoe shop will provide adequate support. Some children require more specialist supportive boots to help control their foot posture while they are learning to stand and balance. These boots are not needed indefinitely and are not prescribed routinely. Your paediatrician or physiotherapist can advise if you are unsure what to do.

    It is also good to let your child walk in bare feet on a variety of surfaces as this helps to develop the muscles in the feet which in turn help to maintain a good foot posture.

     

    Hearing and vision

    Children with Down Syndrome can be more prone to hearing and vision problems than other children, which may contribute to more frequent falls, loss of balance and underestimating obstacles and distances.

    Your paediatrician will advise on how frequently your child’s hearing and vision needs to be checked.

     

    Atlanto-axial instability

    This is an instability in in the joint between the top neck vertebra and the skull, caused by stretchier ligaments.

    Theoretically this could make the joint more likely to dislocate than in people without Down Syndrome. Research shows that people with Down Syndrome probably suffer more sudden neck dislocation than the rest of the population (still very rare), but they DO NOT suffer more neck injuries doing higher-risk activities than other people doing the same activities. Parents and activity instructors commonly worry most about trampolining, horse-riding, gymnastics, diving and boxing.

     

    Symptoms of Atlanto-axial instability

    • pain at a spot near the hard bump behind the ear.
    • prolonged stiff neck.
    • change in head posture.
    • changes in the way a person usually walks - more unsteady.
    • change in a person’s ability to use their hands.

    If you notice any of these symptoms, have your child checked by a doctor. If your child does not have any of these symptoms, there is probably no reason for concern.

    Please make sure that the people who are supporting your child with physical activities are aware of this potential problem and a suitable risk assessment has been carried out.

     

    Walking on uneven surfaces / slopes

    • Try walking on a variety of surfaces such as a mattress, wet and dry sand, pavements, gravel, bark chips and grass.
    • Encourage splashing in puddles!! 
    • Walking up slopes is easier than walking down.
    • Progress from shallow to steeper slopes.
    • Your child may need to hold one hand initially, then progress to walking independently.

    Throwing a ball

    • Start with a beach ball or beanbag and progress to smaller, heavier balls.
    • Underarm throws are easier, then progress to overarm.
    • Throw to a person, then at a target such as skittles to help to develop hand-eye co-ordination.
    • Gradually increase the distance thrown.

    Kicking a ball

    • Kicking is a good way to help your child develop their balance as well as learn to kick.
    • Let your child choose which leg they prefer to kick with.
    • Start with a large, light ball such as a beach ball.

    Catching a ball

    • Help your child to position their arms ready to catch – palms facing upwards and arms out.
    • Start close to your child using a beach ball or a beanbag, or a balloon on a string.
    • Progress to smaller, heavier balls and increase the distance between you.

    Running

    • Your child will learn to run in their own time.
    • Help them by giving them lots of opportunity and exciting, motivating games such as “Ready, Steady, Go!” and races.

    Negotiating kerbs

    • Start by holding your child’s hand then let go as they improve.
    • Stand in front of your child when you let go of their hand so that they can step up or down the kerb towards you.
    • Let your child lead with the foot they choose.

    Walking on stairs

    • Children often crawl up long before walking up.
    • Going up is easier than coming down!
    • Help your child hold the banister or wall with one hand and you hold their other hand so it is in front of them, below their shoulder height. Do not hold both their hands or let your child lean back on you.
    • Progress to holding the banister and letting go of your hand - holding a small toy can be reassuring.
    • Give lots of opportunities to practice.
    • Children will do two feet to a step first, and some will always prefer to do this, but gradually encourage them to do one foot to a step.
    • Practice the bottom few steps only going down and the top few going up so your child “finishes” the activity - Hurray!

    Jumping

    • Jumping can take a long time to master!
    • Start on a mattress or mini trampoline and hold both hands.
    • Practice on the floor, demonstrating how to bend the knees and throw the arms up for momentum.
    • Move on to jumping off a low step and over objects on the floor, e.g. a stick or ribbon.

    Standing on one leg

    • Demonstrate standing on one leg, initially using a wall or table to balance. Discourage holding on to your hand and encourage hands out to the sides.
    • Put your hands on your child’s hips and gently guide their weight on to one leg. See if you can count to 10.
    • Encourage kicking a ball, standing up to put on trousers, socks and shoes, stepping over larger obstacles, doing “giant steps”, walking on stairs, standing with one foot on top of a ball.

    Hopping

    • Hopping comes after your child can jump and briefly stand on one leg.
    • Some children find it very difficult, and some may never be able to hop.
    • Demonstrate and practice the activity step by step, e.g. stand on one leg, bend the knee and push through the foot.

    Sit ‘n’ ride toys and trikes

    • Riding a trike is complicated, and will start to happen at around 2½ to 3 years old.
    • For younger children, start with a sit ‘n’ ride toy, practicing getting on / off and propelling with feet on the floor. Children often push backwards before they can push forwards.
    • Balance bikes are great!
    • Show them how to put their feet on the pedals (sometimes, making a loop of sticky backed Velcro to help their feet stay in place will help).
    • Try and get a trike with an adult push bar at the back so you can help them learn how the pedalling movement feels.
    • Give verbal and physical prompts to push down with alternate legs.
    • For more information on riding bikes, visit https://www.leedscommunityhealthcare.nhs.uk/our-services-a-z/occupational-therapy-ican/
  • Playing

    Playing in different positions with a variety of toys, will help all aspects of your child’s development and prepare them for developing independence in activities of daily living.

     

    Top tips for developing finger control:

    • Ensure your child is well supported in any position they are comfortable in.

    Early play skills:

    • Choose rattles that are easy to grasp and transfer from hand to hand, and hand to mouth, and have a range of textures.
    • Play gyms encourage reaching up with whole arm movements which are important for developing hand control.

    Later play skills:

    • Choose toys that have holes in to encourage your child to use their index finger (poking action).
    • Choose toys with buttons or parts to twist, turn, pull and push.
    • Choose toys that involve, stacking, sorting, posting, putting things in / out. These will help your child to learn how to let go, match shapes, and develop a range of grasps.
    • Give your child opportunity to experience different textures within their play, e.g. sand, water, playdough, dry pasta, etc.
    • Household objects, such as pegs and wooden spoons, can also provide great play experiences for your child.

    Sitting

    Spending time in a well supported sitting position allows children to develop their hand skills so they can play and join in other everyday activities, such as feeding themselves and getting dressed.

    Different sitting positions are useful at different ages, and for different activities.

    The following chairs are examples of seating, separate from your child’s car seat, that are available in mainstream shops.

     

    Early sitting (0-9 months) top tips:

    • Baby bouncers with a deeper seat will help your child’s hips to stay in a better position.
    • Look for a baby bouncer that keeps your child’s head, tummy and hips in the middle.
    • Look for a baby bouncer that supports your child’s shoulders, and helps them to bring their hands forward, in line with their vision.
    • Additional padded support may be required initially.

    NOTE: Using a car seat for long periods of time in the home may restrict your child’s movement and vision and delay independent sitting balance.

     

    Floor sitting top tips:

    • Use more supportive positions if you are focusing on developing play, vision or hand skills.
    • Use less support if you are focusing on developing their sitting balance, and use toys that require less effort.
    • Using different positions throughout the day for different activities gives the best opportunities for development.
    • Some seats can be useful for short periods to help children to participate in activities with friends and family.
    • Avoid propping your child with cushions on the family sofa.

    Inflatable / cushioned floor supports are good for children who have just developed head control and early sitting balance, and no longer need to rely on their arms to prop on the floor.

    Baby snug chairs and other floor sitters with play trays and straps can work well to help your child develop their hand skills and interaction in a safe and supported position.

    Chairs like these should only be used following manufacturer guidelines and when your child has developed some head, neck and trunk control.

     

    NOTE: Some children will arch back when tired of sitting - supervise your child at all times when in a chair.

     

    Box sitting top tips:

    • Your baby needs to experience sitting with their knees in line with their hips, and their feet flat on the floor (box sitting, or chair sitting position).
    • Sitting on a small stool or booster seat on the floor, helps your child to develop better use of their leg muscles in preparation for standing.

    Both of these booster seats are available from high street stores such as Boots, Tesco, Mothercare, and online from Amazon.

     

    Highchairs top tips:

    Look for:

    • Sturdy hip strap and pommel, to prevent child slipping forwards.
    • Over-shoulder straps that fit snuggly.
    • Narrow gap between your child’s tummy and the tray.
    • Hips and knees at right angles, so that your child is in an upright position for swallowing safely.
    • Shoulders, arms and hands should be forward, so they naturally rest on the tray.
    • Avoid highchairs that are fixed in a reclined position.
    • Look for a highchair that can be brought as close to the family dining table as possible, to encourage your child to develop their social interaction skills.
    • Use rolled up towels, or pieces of foam to add additional support if needed.
    • Highchairs can be a place for play, as well as feeding.

    Bathing

    • Independent sitting and good sitting balance often develop later in children with Down Syndrome.
    • You may feel more confident letting your child play in the bath if you use something to support them.
    • Bath time should be a fun place for you, your child, and their sibling to play together, and playing with bath toys is an excellent way to develop hand skills.
    • As sitting balance develops, seats that support round their tummy help your child play in the water.

     0-9 months - Reclined seat with pommel
    You need to be able to lift your child out of this type.

     

    Even with support, never leave your child unattended!

     

    Toileting

    Children with Down Syndrome sometimes struggle with balance and stability which may affect their confidence and comfort on the toilet.

    When using the toilet, something to support their feet and something close to hold onto with their hands may be all that is required to make them feel safe.

     

    Early potty training

    Choose a potty chair that has a high back rest, handles / arm rests and allows your child to sit with their feet flat on the floor.

    When your child can use the toilet, you can either use a seat and step combination, or a separate insert with a handle and foot stool.

     

    Feeding

    Children with Down Syndrome often begin feeding themselves with their fingers at around 10-12 months old.

    Between 12– 18 months, they will begin to take interest in holding their own spoon.

    Feeding skills develop best when children are sitting in a comfortable, and well supported position.

     

    Top tips for developing cutlery skills:

    • Use child size spoons with thick, easy grip handles that curve inwards and have flat shallow bowls.
    • Avoid spoons and forks with thin narrow handles.
    • Use children’s dishes with raised sides, so that your child can scoop the food against the side of bowl.
    • Give hand over hand help to begin with to learn the scooping motion to bring the spoon to their mouth or stabbing motion for using a fork.
    • Gradually reduce the amount of assistance you provide.
    • Use textured foods that will stay on the spoon easily to practice with initially, e.g. mashed potato, fromage frais.

    Get messy!

    This helps children to explore, learn and refine their skills. Messy play ideas - jelly, angel delight, yogurt, baby food.

     

    If in doubt about your child’s ability to eat certain foods, or if you are concerned, they aren’t swallowing properly, consult your health visitor. A speech therapy feeding assessment may be advised.

Contact Us 

ICAN Admin

Leeds Community Healthcare NHS Trust
White Rose Office Park, Building 3
Millshaw Park Lane
Leeds, LS11 0DL

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